My name is Adelyn. I am 10 years old. I was born with cornea defect called "Peter Anomaly". I was sent for 4 times of cornea transplant when I was between 8 to 12 month old. However, all the cornea was rejected. Today, I can only visual lights, shadows and colors.
learning piano when I was 3 year old and now I am in Grade 5. I am
always curious about things that happened around me. I like to explore
new things. I can't see, but I can feel.
I had tried out horse
riding, ballet dancing, Inline skating and many other more. Currently, I
am learning violin and going for Grade 1 examination in September.
year, my mother learned from the media there is a new type of cornea
transplant "Boston Kpro". It is a type of artificial cornea transplant
which suit my eyes condition. Therefore, my mother hope to send me for
this type of transplant which cost estimate $40k per eye.
to play piano very much. I also like to try out different kind of music.
I even tried out to compose my own music pieces. I spent almost 2 years
to compose 4 music pieces and finalise the complete pieces, and I
always wish to have a chance to share my music with the world.
I finally have the opportunity to share my music piece. It might not be
the perfect one, but I do really produce this piece whole heartily.
Hope you will like it.
Words from Adelyn's Mummy, Mary Lim;
Adelyn is a cheerful and optimistic girl. She is always very curious and asked a lot of questions.
She always wonder how the people and things surround her look like. She also very much wants to see herself too.
is no best gift to be given to her, other than sending her to do the
transplant again. How high is the successful rate?? Some may ask.
According to eye specialist, her vision is now equivalent to 0%. No one
able to guarantee it will be successful, but there will be totally no
hope if we do not try at all.
A Life time follow up on the eyes after operation is require. So I will be expecting a monthly increase in my expenses. But this does not stop me to send her for the upcoming operation.
As "SEEING" is Adelyn's only Hope and my only Wish.
Dear Adelyn, I have listened to your CD for the 1st time this morning :)I love your voice. You have composed beautiful music that brings a smile on my face. thanks for sharing :)ReplyDelete
I remember hearing your singing during last year’s NDP.
You have a great voice, my dear:)
The last time I saw you was at my father’s funeral last year, if you still remember.
Although we seldom (very seldom) meet or interact, maybe it was kinda unbelievable, but I do think of you sometimes.
I just heard about your CD through my sister and so searched for you on the internet, finding your blog.
This is the first time I am reading about your condition and the attempts you and your mum have tried to make things better.
Although the previous attempts for the cornea transplant did not succeed, but I believe that it is hard to have failed, but it is worse to have never tried to succeed.
You and your mum have been very brave people.
Having said so much, all I actually wanted to say and express is:
All the best Adelyn! *HUGS*
Wish you success for the upcoming cornea transplant k!
Your xiao yee yee
P.S you don't have to publish this comment, I just wanted to wish you but don't know how to, so put it as a comment:)